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There is no cure for NF2. There is yet to be a medication that will shrink all 3 NF2 tumor types (Schwannomas, Meningiomas and Ependymomas) that are found in individuals with NF2. The tumor types that have shrunk from medication have only been effective up to a certain percentage. But the medications do not even work for everyone.

Included here are charities you can donate to to help find a cure for NF2.



NF Network

Neurofibromatosis Network

  • Run for NF
  • Inspire - Support Community
  • Find a Doctor
  • Camp New Friends
  • Medical Online Webinars


Neurofibromatosis Midwest, NF Midwest

Neurofibromatosis Midwest

Clinics, Awareness, Research, Education & Support



CDMRP - DoD

CDMRP - DoD

Congressionally Directed Medical Research Programs funded through the DoD (Department of Defense).

Vision: Decrease the clinical impact of NF.



CTF, Childrens Tumor Foundation

Children's Tumor Foundation

CTF is dedicated to improving health & well being of individuals & families affected by NF.

  • NF Endurance
  • NF Race for Research
  • NF Walk
  • NF Camp


NF2 Information & Services

NF2 Information & Services

  • Support and Educational Events
  • Print and Online: Educational Material
  • Medical Center Education
  • Cheer Project
  • Research


Advocure NF2

Advocure NF2

Advancing Research for NF2

  • Quarterly NF2 Newsletter
  • Yearly Fundraisers
  • Advocacy for CDMRP Funding


Help Stop NF2

NF Organizations Worldwide

Find an NF Organization by you.

List of 14 additional NF Organizations through the world.