About NF2 IS

Last Updated: 04/4/17

Support Hands


  1. Who We Are
  2. Organization Goals
  3. Donations: Donate Now

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1. Who We Are

Founder and Chief Executive Officer (CEO)


www.nf2is.org is owned by NF2 Information and Services, Inc. NF2 Information and Services, has been a corporation since September 2013 and a charity under section 501(c) (3), as a Public Charity Status of 509(a) (2) since July 2014. The organization is dedicated to the education of Neurofibromatosis Type 2 (NF2) health issues and treatments. Charitable funds raised will go to; 1 - Support and Educational Events, 2 - Print and Online: Educational Material, 3 - Medical Center Education and 4 - Research for people with Neurofibromatosis Type 2.

There is no cure for NF2, but the constant advances in medical development today have only recently started to be truly helpful managing some of the symptoms that patients with NF2 endure. We, as an NF community, need to be aware of how to find NF2 specialists and the newest available treatments and procedures to consult doctors about. We endeavor to thus improve our quality of life.

NF2 Information and Services is dedicated to helping people with NF2 who are looking to learn and find the information and services needed to live better, feel better and do better as they deal with their NF2 issues.

2. Organization Goals:

NF2 Education

Research on up to date information for Treatment Pros, Cons, and Options for;

  • Prevention When Possible
  • Recovery of Issues
  • Improved Quality of Life

NF2 Information and Services is not just a website, a book or series of books, but an organization that was formed to help guarantee people with NF2 can get better medical help with information known now. We want to make it possible to find doctors will know what NF2 is and how to manage it correctly. There is no cure, but there are treatments that can help us now, things very few doctors are aware of.

  • share information for earlier diagnosis
  • share information on things that can delay tumor progression
  • help people with NF2 learn communications options for independent living
  • help people with NF2 recover from tumor issues faster and more completely to help them live longer
  • help people with NF2 find a listing of sources for services they might need

3. Donations

NF2 Information and Services pages are meant to be shared with doctors and others with NF2 in the hope that more people can be helped.

A more complete PDF will be available as a free downloaded file before July 2017 if at least $6,000 can be donated to the NF2 Information and Services, 501(c) (3), as a Public Charity.

When $40,000 is reached a book version will be freely distributed to everyone including; individuals interested in learning about NF2, hospitals and medical schools.

i. Donate Online with Donerbox

Click the link to learn more about our goals at Donerbox: Donate Now

ii. Donations By Mail

Write the projects you wish to see your donation go to on the check or in a letter.

  • NF2 Information and Services
  • PO Box 714, Upton, NY 11973

iii. Boston Marathon - Anne Noble

Donate Now

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Disclaimer: Neurofibromatosis Type 2 - Information and Services, www.nf2is.org, is not run by medical experts, affiliated with any healthcare organization or any other company. No assurance can be made to the accuracy or completeness of the information provided here, the accuracy of other sites to which this site links, or of sites that link to this site. - Read More

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