Neurofibromatosis type 2 (NF2) is a rare genetic condition with a missing or damaged tumor suppressor protein that results of typically slow growth of two to hundreds of tumors during an individual's life. Each tumor might have a different pattern of growth, and some or all can potentially stop growing for years. There is no cure for NF2.
The butterfly is a symbol of adaptability and change.
The slower the growth of tumors, the greater the chances are of adaptability of each mass before it may become problematic. As harsh as the issues might be, adaptability also applies to recovery, an example of this is that a person with NF2 will walk again after balance issues, faster than expected.
When people and families facing Neurofibromatosis Type 2 (NF2), understand the possible issues it can allow for steps to be taken for prevention of some issues, otherwise better and possible faster recovery of others.
We hope that following NF2 Information and Services constant share of medical advancements, we can also help with promise and hope. - Learn More