NF2 Information and Services - Sitemap

Last Updated: 02/27/17

  1. About NF2 Information and Services

  2. NF2 is...
    1. Diagnosis of NF2
    2. NF Criteria
    3. Genetics
    4. NF2 Tumors
    5. Reasons for Tumor Growth
    6. Tumors and Nerve Damage
      1. Cranial Nerves
        1. Brain and Cranial Nerves - Graphic
        2. CN 2, CN3, CN4 and CN6 - Eyes - Vision and Movement
        3. CN 5 - Trigeminal Nerve
        4. CN 7 Facial Nerve Damage
        5. CN 8 - Vestibulocochlear Nerve: Cochlear and Vestibular Nerves
        6. CN 8 - Graphics
        7. CN 10 - Vagus Nerve
      2. Spine and the PNS (Peripheral Nervous System)
        1. Skeletal Abnormalities
        2. Peripheral Nerve System - Damage - Peripheral Neuropathy
        3. Vertebrae Graphic
      3. Brain Compression
        1. CSF Issues
        2. Epilepsy and Seizures
        3. Strokes
    7. Eye and Vision Issues
      1. Dry Eyes and Excessive Tearing
      2. Eyes - Large View
    8. Low Bloo d Pressure / Iron Deficient Anemia
    9. Drop Foot
    10. Balance Issues
    11. Family Planning
    12. Avastin and Premature Ovarian Failure
    13. NF2 and Pregnancy
    14. Ring Chromosome 22
    15. Tinnitus
    16. Migraines and Other Headaches
    17. NF Science Timeline


  3. Treatment Options
    1. Treatment Center Information
      1. Health Management / Observation
      2. Service and Support Animals
      3. NF2 Specialists - Doctor Types Needed
      4. Location Recommendation - Reasons for Complete NF2 Staff
      5. ABI Audiologist Listing
      6. National Institute of Health
      7. House Research Institute
      8. NYU Langone Medical Center
        1. Mitchell, Carole Wind, RN - NF Clinical Coordinator
        2. Roland, J. Thomas, M.D. - ENT - ABI & CI Neurosurgery
        3. Shapiro, William H., Au.D. CCC-A - Audiologist - ABI and CI
        4. Golfinos, John G., M.D. - Brain Neurosurgeon, Stereotactic Radiosurgery
        5. Frempong-Boadu, Anthony K., M.D. - Neurosurgeon - Spinal Surgery
        6. Wisoff, Jeffrey H., M.D. - Neurosurgery - Brain Tumors
        7. Sen, Chandranath, M.D. - Neurosurgery - Skull Base Surgery
        8. Karajannis, Matthias A., M.D.Neuro-oncology - Clinical Drug Trials
        9. McMenomey, Sean, M.D. - ENT - ABI & CI Neurosurgery
        10. Allen, Jeffrey C., M.D. - Neuro-oncology
        11. Steele, Mark A., M.D. - Neuro-ophthalmology
        12. Warren, Floyd A., M.D. - Neuro-ophthalmology
        13. Pappas, John G., M.D. - Genetics
        14. Miller, Philip J., M.D. - Face Reanimation Surgery - Plastic & Reconstructive
        15. DeLacure, Mark D., M.D. - Face Reanimation Surgery - Plastic & Reconstructive
    2. Microsurgery
    3. Preparing for Surgery
    4. Radiation Therapy
    5. Hearing Loss Options
    6. Hearing Implants- Graphics
    7. Tumor Supressors
      1. Inhibitors & Mechanism of Action
      2. How Clinical Trials Work
      3. Clinical Trials (Targeted Treatment)
        Current NF2 Clinical Trials
        1. Bevacizumab (Avastin™)
        2. Axitinib (Inlyta™)
        3. Endostatin
        4. SOX 10 (MLN4924)
        5. RAD 001 - Everolimus (Afinitor™)
        6. OSU-HDAC42 - AR-42
        7. Lapatinib (Tykerb™)
        8. Nilotinib (Tasigna™)
        9. Sorafenib (Nexavar™)
        10. Erlotinib (Tarceva™)
        11. Imatinib (Gleevec™)
        12. Sunitinib (Sutent™)
        13. Selumetinib - AZD6244
      4. Phytotherapy (Botanicals)
        1. History of Botanicals
        2. CAPE Propolis
        3. Boswellia
        4. Curcumin (Super Bio-Curcumin®)
    8. Better Health
      1. Nutrition
        1. General Nutrition
      2. Health Recovery
      3. Rate of Healing
      4. Acupuncture
      5. Vitamin B12 - Healing Nerve Damage
      6. Folic Acid
      7. Alcohol and NF2
    9. Sleep
    10. Vestibular Nerve Damage Recovery
    11. Balance Assistance
    12. Gene Therapy and Synthetic Merlin
    13. Stem Cells


  4. Hearing and Vision Options
    1. Communication Strategies
    2. Vision Loss Options
    3. Deaf Resources
    4. Free Interpreter Service by Law in American Hospitals
    5. Hearing Implants
      1. Gallaudet University
      2. RIT - Rochester Institute of Technology
      3. Helen Keller National Center


  5. Fundraising For NF
    1. Neurofibromatosis Awareness
    2. Coverage Assistance
    3. Other NF Charities
      1. Childrens Tumor Foundation
      2. Advocure NF2
      3. Neurofibromatosis Network
      4. Can You Hear Us
      5. NF Organizations Worldwide
    4. Organizations Worldwide


  6. News

  7. Other Pages
    1. Free Time Activities and Hobbies
    2. NF2 IS Images
    3. Support
    4. NF Support Graphics
    5. NF2 Transcripts and Videos
      1. NYU Conference 10-27-12
      2. NYU Conference 11-15
      3. Ohio Gathering 2013
      4. Ohio Gathering 2015
    6. Unanswered NF2 Questions
    7. Research
    8. Trusted Research Sources
    9. Living with NF2
    10. Medical Documents
    11. Medical Confidentiality
    12. Contact NF2 Information and Services
    13. Schwann Cell Damage
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